PANDA/PANS is NOT Pediatric. Now referred to as autoimmune encephalitis.


For those who have been following my daughter’s journey from vaccination to increased bacterial and viral illnesses, then AUTISM to Seizures, then a PANS diagnosis (Pediatric Acute-onset Neuropsychiatric Syndrome) to her recent diagnosis of Nonfamilial Hypogammaglobulinemia, please check out this story I need to share. Its origin is a FB post I came upon from a group that I visit. The author gave me permission to post as she truly wants other parents to know about her family’s plight, so no other family will live this horrific experience. There are almost 15,000 members of this group and we are all parents of PANS/PANDAS kids. The reality is that PANS is NOT a rare diagnosis and it is NOT JUST PEDIATRIC. It also seems that the cute PANDAS label has not helped in the urgency of this disorder – as the researchers and doctors at a recent conference were stressing this change to PANS/PANDAS – now referred to as autoimmune encephalitis.